It was a point of serious contention on who ‘cared’ for my sister, a back and forth, that was a constant strain.
….and still do. I miss my sister Kelly.
It is that moment when as a caregiver, there is no longer forward momentum. That precious life that has been held for so long can no longer be carried.
My brother was unable to speak due to the affects of Huntingtons Disease and blind due to glaucoma. Was he still with us? The answer came one day as we spoke of fond childhood memories. He began to cry. THE POWER OF THE HUMAN SPIRIT….
My voice, reminding her of reality, was drowned out by the constant voices in her head.
There are those very special people who come with the heart and the intelligence to make such a difference in the journey of a caregiver.
As her symptoms began to dictate her physical and psychological persona, the real person slowly receded. I knew, though, she was still there..I looked into her eyes and found her.
Guilt…a heavy coat to wear….
The daily medication kept the symptoms minimalized but over the years, it changed who she was.
Through the daily effects of the disease, the cruel insults of society and the awful push and pull of family, I looked into my sister’s beautiful blue eyes and marveled how much love there was.